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28 September 2011

Our Awesome Day

We have had a return to some beautiful dry weather again. It was a perfect opportunity today to get out for an errand and see if my new rigid handle hardware could be adapted to for public access or if, like most in wheelchairs feel, rigid hardware just can not be done with the wide turns and obstacle avoidance as a wheelchair guide team or if we could in fact do this.

I love the feel the handle gives me as Thane guides. Its so much more precise. Movements that before felt so jerky due to the flexibility in the handle connection, now feel pristine.

I can't remember a time when I felt so sure of what Thane was telling me than I did today. It was just the most amazing feeling. My vision has been on a steady decline and as a result, I was feeling like I needed some sort of change to better understand the communication through the harness that Thane was providing to me. This is a team effort. Thane can only provide his end of the equation. He can't decipher what I have to when the handle flexibility leaves me questioning just how far to the right or left I need to move for the obstacle clearance.

We work well as a team, but with the ever changing level of my blindness, I just knew I needed more. I'm proud of this day. It was a day where I was able to capture a snapshot of how great a team we have become- a snapshot of being flexible enough (yes, even my redhead Border Collie who is so set in his ways), to make the changes together- to learn how to work once more with new gear that will broaden our independence as the shining team we have become.

Lyme may have stunted us for a while, but I feel like the light is beginning to glimmer again. He is full of energy, stamina, and bounces when I say lets head to town. A long summer indeed, but one where so much progress has occurred.

No, we are not done the fight, but with many symptoms a thing of the past, our focus is now on the fact that we are back as a team and that is just the most wonderful feeling.

16 September 2011

Life is Good

The season is winding down. We went from our really atypical September 90's to 60's Brrrrr I hate drastic temperature changes. My body does better acclimating when its slow changing. Thane however loves these temps LOL

Though our summer feels like it passed us by as we worked on bringing Thane back from Lyme, that was quite a treat to have a bit of September Summer so to speak- or at least it was a treat to me.

During this time, I worked what may have felt tirelessly on figuring a way to address Thane's icepack needs with the new harness design. It seemed everything was failing and would fail. I did many sewing projects trying to create things differently that would provide the cooling he got with his flatpacks years before. Finally I stumbled upon it. YOWSER!  A single flat ice pack is used on his back that fits perfectly with a small adjustment in the loop connection that required no modifications. Next summer he will appreciate this more than he can now in our 60 degree temps LOL

We are enjoying life again though. Every once in a while I see a clown emerge and it makes me just laugh, smile and forget about what we have been through for at least that time. I am a firm believer in the fact that trials can make you into a stronger team if you allow them to do so.

We've allowed them to do so

10 September 2011

Beauty at First Sight

Today I celebrate Chimette's life- the life of the one that started it all. Anniversaries are always tough, but Met's especially so with 9-11 following it, I have the nation each year reminding me of my loss. Some years are easier, but this one has been tougher with the struggles for Thane. This is Thane's blog, but in a sense there would not be a Thane if there had not been Chimette- so it seems fitting to remember him today here. I thought I would share some memories today- just perhaps a glimpse, but things I was thinking about.

I was mesmerized by that beautiful tri-colored pup huddled in the back of the crate at the adoption center. Though I saw the other puppies and dogs there, I did not really see them. I only saw this beautiful Border Collie mix boy. I loved him before I even touched his soft fur. There was just something inside telling me he was meant for me. I spent what seemed like hours sitting there talking to him. No one told me to move along or anything like that. I finally had to leave and as I did I looked behind at him as though I was making the biggest mistake of my life leaving him there.

It was a Saturday and there was one hiccup that prevented me from adoption on the spot- well two actually. He was only 6 months old and our lease required dogs be a year old. I had to get permission to have him, had to hope no one else got the connection I did with him,  and I also had to go on a petstore shopping spree. I knew nothing about dog care besides that from the pets we had growing up.

After he joined my life, I made some bad decisions along the way, allowed myself to be pressured by a vet to do things her way as opposed to what I wanted and was comfortable with. Met paid the consequences of that in a huge way.

This pup would change my life forever in the ten years we were together. I never imagined the ease of which I could live life with a dog at my side helping me with chores, alerting me to sounds, guiding me through life. He was my first and the first as long as you are a good match and bond well is always the one you compare others to (or so I have been told)

Met and I lived a very tumultuous life together throughout our partnership between my health and his it often felt like we were on a roller coaster. My sedentary lifestyle allowed for me to work with him throughout his life but I learned a lot in hindsite too- things I would do differently now. This song Stand By Me by Ben E. King really says it all

Stand By Me

When the night has come
And the land is dark
And the moon is the only light we'll see
No I won't be afraid, no I won't be afraid
Just as long as you stand, stand by me

And darlin', darlin', stand by me,
oh now now stand by me
Stand by me, stand by me

If the sky that we look upon
Should tumble and fall
And the mountains should crumble to the sea
I won't cry, I won't cry, no I won't shed a tear
Just as long as you stand, stand by me

And darlin', darlin', stand by me,
oh stand by me
Stand by me, stand by me, stand by me-e, yeah

Whenever you're in trouble won't you stand by me,
oh now now stand by me
Oh stand by me, stand by me, stand by me

Darlin', darlin', stand by me-e, stand by me
Oh stand by me, stand by me, stand by me

 He was my first and as my first, he will always hold my heart- from the memories of him as a 6 month old puppy where life for both of us was more carefree

Chimette lays beside my wheelchair shortly after adoption  

To the journey through what I would later learn was vaccinosis, but amidst all that he learned how to be just the dog I needed- he became my ears, my eyes, my hands, my all

Chimette adapts to a new disability- getting the hang of guiding me

 Above all Met became my best friend reducing the isolation I felt when my MCS went into full gear. He became my very own sidekick. He always knew when I needed a cuddle, a kiss, or a great big laugh. One thing I miss most about him is his talking. He was one of the most expressive dogs I ever knew back then. I did not realize how much I missed that until recently. Thane is not a talker like Met was. I am letting myself remember the silly talkative memories today and mostly I am laughing about them.

Met and I in harness for a picture February 2005
There was so much I learned from this beautiful boy and our journey- medical lessons are always hard but the key is to learn from them and that I did in leaps and bounds. I never imagined though just how much my life would change when I brought that silly pup into my life. Honestly I did not know if I had what it took to train my own. Though there was a time when I felt Met did not have what it took, he proved me wrong. Together we proved just what a tenacious team can do when given the chance.  He changed my life, my outlook, and my independence for the better. I learned so much- broadened horizons by being partnered with such a spectacular dog. He truly was special.

Met and I needed a lot of adaptations to our way of life, to the way we worked together, so we broadened our horizens through agility enabling us to flow in better sinc- as though we were one being often times.

Collage of Met and I doing agility obstacles-teeter, weave poles,jumps, A frame, tunnel
He was in all senses of the word, my very best friend. There are so many songs we used throughout our life together. During harder times I would sing to Met as we went along. A common one was the chorus to You are My Sunshine but The Dance by Garth Brooks is special to me when I think back over our life and the passing of Met on his anniversary.

The Dance

Looking back on the memory of
The dance we shared beneath the stars above
For a moment all the world was right
How could I have known you'd ever say goodbye
And now I'm glad I didn't know
The way it all would end the way it all would go
Our lives are better left to chance I could have missed the pain
But I'd of had to miss the dance
Holding you I held everything
For a moment wasn't I the king
But if I'd only known how the king would fall
Hey who's to say you know I might have changed it all
And now I'm glad I didn't know
The way it all would end the way it all would go
Our lives are better left to chance I could have missed the pain
But I'd of had to miss the dance
Yes my life is better left to chance
I could have missed the pain but I'd of had to miss the dance

03 September 2011

Venting on Attitudes

As long as I have trained my dogs, I have tried hard to surround myself with those who have positive attitudes about owner training as well as those who get how different working a dog from a wheelchair actually can be.

This has not been easy at all because that limits my exposure to the guide community substantially. Its only been of recent years that the view that the blind can not train their own guide dogs has begun to be trampled down by some of us who do it and do it well.

There's always been an issue I have had with advice from ambulatory disabled people- be they blind, deaf, or mobility impaired. After years of having to explain over and over again why their ideas won't work with a wheelchair team or that their ideas are unsafe, I've pretty much given up with explanations any more.

I'm on a couple of guide dog specific lists. Though I am a part of the lists, I always feel this attitude from some of the members- the attitude that because I owner train, I am missing a big part of what the programs can provide and therefore can't be certain that my approaches I chose are really the best. There's also that attitude that I am not really a part of the whole community not just because I don't go through programs but because I clicker train and God forbid I should offer someone some advice that just might be contrary to what their corrective based program would want.

Usually I just back away when the attitudes start coming. People offering advice about how they believe what I do is dangerous when its not (gotta be there to see how its done to judge that) and then offering me advice that is more of the same nonsense I've been fed for over a decade. I just get so sick of unrequested advice.

No matter what anyone wants to believe, just like I can't realistically know how much different my work with a guide is than how an ambulatory person works or trains their dogs other than knowing some of the differences in the approach to guiding, neither can the ambulatory really comprehend the ins and outs and dangers that the approaches they might take could present for someone working their dog from a wheelchair.

Offering true beneficial advice on the actual aspect that one is asking for input on is one thing, but where things go blurry is that the vast majority of those who think they know what's better for me and my dog are not even owner trainers or people who further their dogs training.

I just get so fed up

Right now I am going through a tough time. I don't have much patience for anyone or anything let alone busy bodies who think they know it all. I will admit that maybe these people think I could be more tactful but when you've been dealing with the same-ol, same-ol for over a decade, wouldn't you get tired of being all sweet and supportive in your responses. Its sorta like telling someone day in and day out why they can't pet or distract your dog.

I probably should have ignored the post altogether that claimed something I do to be dangerous since the person did not have all the facts to begin with, but alas I did not. In hindsite stupid really

I go through this kind of crap way too much on lists that are not multi-disciplined meaning lists that have one type of service animal as the focus and not ones that involve wheelchair users.

So for now, I'm taking a step back. I won't be reading posts on the list. I won't be replying to posts on the list. And above all I certainly won't post about any of the problems I am having for any sort of advice.

Some may feel I need to get a thicker skin, but honestly I think others need to open their eyes and think or consider asking more questions before judging whether I have enough experience or people with that experience at my disposal to ascertain what is safe or not (which btw I do)

Most of my ambulatory guide dog  friends are awesome. They are folks from around the world who just get owner training. They get operant conditioning or at least that I am not going to use corrective measures as my focus with Thane. They freely admit that they don't have all the answers when offering suggestions which they know may or may not be something I can do either because of my disabilities themselves or because of safety concerns between the wheelchair and work with Thane.

For now, these are the kind of people I need to surround myself by. If others take offense because I just can't handle the slaps I get for speaking how I feel- then so be it. Its their problem really.

20 August 2011

Optimism

Summer has officially hit the Pacific Northwest. 96 in Portland by the five o'clock news which could go higher. Generally speaking, we tend to hit 2-3 degrees higher than that temperature in summer time unless winds are present from a cooler direction. That's not the case today. As for summer though, better late than never huh?

I had errands I needed to do this weekend. I procrastinated the New Seasons run, but figured I could use the two bus lines to get there today still since Sunday is the only day that line is unavailable. When I logged onto the website however to get bus times, I discovered that due to the airshow they had altered the route in a manner that made it not an option for us.

I struggled for about fifteen minutes over whether or not to give it an attempt using the Orenco max stop. I don't like the constant back and forth angles of the curbcuts on that street- leaves me disoriented at best. For Thane to go though, I decided to give that a go because the difference in pain would have been immense.

We had already got up over an hour earlier than usual to get all Thane's meds, supplements, Petz Life accomplished so it just made sense to give it a chance.

Thane really surprised me today. Though he still has some *follow the edge* necessity, it has tapered enough that I can live with it. His work was actually pretty right on for the most part as well. I would say he was about 90 per cent the norm today. In the process of Lyme from day to day, each day has differing function, but I am beginning to see more up days as long as I am careful not to overdo with him. These good days are leaving me with more of an optimism towards recovery.

We had to wait for both the max and the bus- why is it that on hot days we seem to *just* miss them? It was not too bad of a wait though either time- just ten to twelve minutes or so. The heat was not so bad so I decided to get off the bus a bit early and walk a bit before we got home because Thane still seemed full of energy. When we got off the bus though, I regretted that decision right away. It was significantly hotter in our town in comparison. Though we made it home alright, it's not a decision I would have made had I known just how much higher the barometer was here.

Thane rested in his swamp cooler while I spent a good deal of time rinsing, cutting, and freezing berries. The local strawberries were horrible. The produce man (not the usual good weekday guys) considered them good because they were just picked two days ago. Even I could tell that a good lot of them were spoiled beyond the edible. They also had no cover to their containers. I hate berries packaged that way as they not only are a trial to get home but they absorb store odors and can be contaminated by other peoples hands- be it germs or personal care products. Thankfully I found some good California ones that were packaged better for my needs. I also learned the California ones tend to be available for about eight or nine months out of the year.so its mostly the blueberries that I have to try and clean up on the next month or two. Thane was so patient as I wheeled from one berry display to the other and back again to the other to determine what ones I was going to take home. I like to support our local farmers but not when their product will just be dumped in my trash.

Thane was so good until a manager tried to walk over him. I really don't like people to walk over him because people can fall and where will they land? He got up and she stopped to apologize to him at which point he decided he should attempt to visit- ughhh That is the first time he has done that in ages, but he also has not worked a lot lately and she did not do the whole *ignore the working dog* routine so there's blame to go all the way around. smile

I sure was glad to get my sweatshirt off when we got back home and I know Thane was loving his wet towel wipe down. When I do the wipe down I wipe his entire body and spend extra time on his underside to cool him down some as well as to do a bit of a tick check. It's not as thorough as I would like, but under the circumstances of just getting home, it's better than not doing any. Then comes his swamp cooler. He does not like it going on as its got a tight neck, but he gets all waggy tail once the head is through because it feels good I am sure. If I find out the technology in it won't be ruined by cutting it, I may re-design the neck in it so it's easier to get on. A small is more designed for a Cocker Spaniel not a Border Collie so the neck circumference is not the best. Now that he has filled out more, I am seriously considering getting him a medium. Boy it's been wonderful to have it though- especially with the heat today and the reduction in cooling from having no trees out front.

I sat here all afternoon in my cooling vest and Thane in his swamp cooler. He spent the rest of the day either sleeping or playing with me- both of us were comfortable  so I guess that is really all that really matters huh?

12 August 2011

My Silly Dog

I thought I should pull myself away from my mountain of housing re-cert paperwork and share something fun about Thane.

Thane has never been a dog with gusto confidence when it comes to getting his ball out of tight spots. Met was a lot this way and in time he developed major confidence in this so I had/ have no doubts with Thane. Thane's seems to be impacted by taking meds also. It does not seem to impact his work in public and when its necessary he will definitely retrieve things for me that are harder to get at, but there's always been this side to him and probably always will be to some extent.

There is one thing that I find absolutely silly, hilarious, create your own adjective for the scenario if you want after reading about it.

I live in an apartment set up (or at least in many ways set up) for a person in a wheelchair. They definitely thought that all people in wheelchairs have someone else cook and bake for them, but that's a whole other topic. Instead of a bath tub we have a large roll in shower. It sort of slopes to the drain so as to not flood the bathroom. As a result of this slope, Thane's ball always seems to find its way down to the drain.

I wash and hang my laundry in this shower so often times there are those *close confines* that Thane is not so comfortable with. By morning when I am removing the clothes from the line, there can be anywhere from one to five balls down at the drain level of the shower because someone would run get one from *toys* when he lost a ball rather than asking me to *encourage* him past the laundry, fan, and other paraphenalia.

Each morning after I have put the laundry away, Thane comes to retrieve the balls for me. Most dogs would walk down there, retrieve the ball in their mouth and bring it to you- right? Not Thane. From the very first time I had him go down into the shower to get a ball for us, I had to hold back my laughter. Thane is a very long dog, twenty-seven inches collar to base of tail. He walks down into the shower part way, stretches as far as possible, then nudges the ball to roll towards him. He does this all the way to the edge where the shower meets up with the bathroom linoleum flooring. At this point, he whips around and proudly produces the ball in my hand. It is so hilarious. Try as I might to train him to actually retrieve the ball at the drain position and walk back to me with his ball in his mouth- it just aint ever happening! This is the only toy he treats this way, the only place its treated this way and its just downright fun to experience.

You might ask why I find this fun, silly, hilarious- oh its because it is different than Met. It is different than any other dog I have ever read about. It is just a part of who he is and well- that makes it special in my book.

03 August 2011

Keeping Busy

The weather has been beautiful here in the Pacific Northwest FINALLY! Though I'd love to say we have been kicking up the dust behind our wheels and paws, we've been keeping busy in other ways. Taking some time to catch up on tasks left by the wayside from busy life requirements.

I've actually caught up on laundry, had the opportunity to make a new brace that was desperately needed, even washing and repairing some of the gear we use that we don't have extras of. In my spare moments, I am busy learning everything I can about Lyme and in turn, educating others about the importance of testing.

We may not be out in the glorious weather every day in the way we have been most years, but I am for sure enjoying the beauty of the sun beating down, the dry weather that I am able to do most of my solo trips in and frankly actually enjoying taking the time to tick check, massage, and stroke Thane in ways that busy life just never allowed for in the past.

You know how it is. You get caught up in the busy chores and errands of your life and forget to take time to actually enjoy the moments you have together. Though this isn't exactly the kind of thing I would wish on anyone, sometimes it takes these kinds of events to force us to stand still and appreciate just what we have.

I enjoy the little memory building moments- Thane dancing about with his zogoflex frib- my funny clown