Today is a brand new day. A good nights sleep. A new perspective. A visit from Grandpa for Thane and housekeeping on my computer that needed a sighted techie.
Thane has exhibited some good energy today. He has slept much less and has spent a lot of time playing. There were times when I saw his normal ball obsessive self emerging just a bit. I was afraid at first to read anything into this as he has seemed to have more energy for a couple hours after his meds. When the energy remained much the same through out the day, I felt a little twinge inside myself- you know that one where you realize the down days are numbered and the work days will possibly be resuming soon within moderation of course.
There also have not been any lameness incidents today- though those seemed to be fewer as the neuro symptoms began to set in so this in itself was not something that I was using as a guide to ascertain how he was really doing.
There's still some very obvious factors that are not my Thane. Thane has had a number of occasions over the past couple weeks where he went off his food. He would eat some- mostly the Nupro and organ parts, but it was like a child playing with their food when it came to the main course. Two of these incidents have happened yesterday and today. I'm trying not to make a big deal out of them. I just grab the food, wrap it back up, and set it in the freezer for another day. Today, I decided to just set it in the fridge and offer it when I had my dinner. Yeah! He ate and was really eager when he saw what I had.
I am suspecting that the meds may be affecting his appetite. He has not puked or had diarrhea so its hard to ascertain if there are tummy issues happening without that. I've been trying to med him and then feed two hours later because he won't consume his Nupro later than meal time and he can not have his probiotics with Doxy either. By doing it this way, I've been less likely to forget something crucial like his probiotics which he must have for gut and skin health due to previous history. I suspect I may need to go to giving him food at the time of the dose and if I thought my life was made complicated by these meds now, it certainly will be later.
As a person with MCS (Multiple Chemical Sensitivity), I need to do my outings early in the morning so that I am out when crowds are not as intense. On days when I don't have to head out, I could care less what hour Thane gets done eating. On days when I need to go out however, even with dosing him at 7AM, it still pretty much means that I can't get a bus until at the earliest 9:45. By the time I get anywhere this way it is downright crowded and the toxicity effects for me are substantially raised. It'd be one thing if this was just a one week antibiotics run, but as my good friend Sharon at After Gadget blog said to me recently, this is a marathon not a sprint. I will figure this system out- we will make it work. If it means Thane prefers to eat mid day or when I eat dinner because he just feels better then, then I will figure a way to make that happen.
This is the time of year for adventures. My idea of adventures is trapsing to parts unknown to explore. I guess in a rather twisted, distorted way of looking at things, Lyme Disease could be considered an adventure. After all, it does have us trapsing into the unknown!
My Dad was telling me a recent story about my mom. She does a lot of work in her yard and a critter she did not know got onto her while she was working in the yard. She quickly put it in a container and rushed off to the vet with it to find out if it was a tick. I am sure that she shared about Thane in the process- but hey, if Thane getting Lyme makes her more aware of the *unknown species* of critters in her yard, then to me it is worth the journey. I did not know what a real tick looked like. Oh Thane has some cute stuffed ticks that he absolutely loves, but I had no idea what a tick was like. If I can make even one person more aware then this journey of ours is beneficial.
Dad went on to tell me about when he was a kid. They had a bunch of ticks I guess where he grew up in Missouri. They just would find an adult with a heat source that they would hold close to the tick and they would back right out. I just thought they were crazy personally. He followed that up with a *don't do this at home on your dog and especially not when you are blind* LOL
If you are reading this blog and want more information on ticks, please see the postings on Ticks, Lyme and Related Information at After Gadget blog as well as her awesome blog on How to Tick Check Your Dog. If you are looking for a basic site that has some information but some of which is pretty superficial IMO see Ticks, Dogs, and Disease. Now if you are looking for good information that can help you understand what you are up against, as well as a support forum, take a look at the Tick-L links and forum. Though I am not a part of the forum, I found a lot of clarification on things that were so confusing to me through the articles here as well as Sharon's awesome support and further mentoring of me as I learn first hand about a disease we both wish we never had experience with (I am sure)
09 July 2011
07 July 2011
Reality Stings
We all hear how horrible Lyme Disease can be. My good friend Sharon at After Gadget blog has been living with it for years and I have watched, listened and wished I could take her suffering away. She was a mentor for me years ago when I was first hit with severe Multiple Chemical Sensitivities and she has become a mentor once more for me- walking me through the process of learning all I can to help Thane be all he can be.
When Thane was diagnosed, I remained pretty optimistic about it all. I had the attitude of *finally we know what's wrong* more than the attitude of how damaging a disease this can be. When the vet said he could still work as long as I listened to him, I assumed in error that as long as we took days off to live life at home, that Thane and I would continue to do at least the errands we loved to do as a team.
Today I got hit right between the eyes with how wrong I was. Reality quite frankly stinks. It rarely measures up with expectations. In this case I just felt empty. I had Thane in a situation where the only solution was to walk short distances and stop for breaks- breaks that Thane determined the length of time we took down time along the route back to the max stop. I did everything I could to minimize his walking distance- took a stop I loathe so that we just had to go up to the end of the transit center stop to connect with our bus and then took the stop in town that we could follow a shortcut path straight home.
I was glad to be home and above all sorry from the depths of my being that I had so badly misjudged Thane's abilities right now. All I thought about is that we had been home for several days rest which IMO meant we were good to go.
Now with reality setting in, I feel this sadness coming over me. Don't get me wrong, I still aim to be optimistic here- but reality just has a way of jerking you back from this fantasy of what it will be to what it truly is. Lyme Disease is not for the faint of heart. It ravages ones insides- affecting everything and anything in its tenacious journey.
I knew that we did not catch Thane's early. This bug has had over two years to bounce around inside of him causing one roller coaster ride after another along the way. He'll still jump up after a really long nap to play some ball, but there is less drive- less forceful obsession in the way he goes about it. One of the biggest things I noticed this week was how much he slept. Every time I turned around to do something, he was curled up again taking another nap. I'm trying to tell myself that this is good that he is listening to his own needs, but a part of me feels wounded by it as well. From the simplest of issues to fluctuating lameness to neuro involvement, Thane has been trying to tell us for over a year that something was wrong.
Some people seemed to feel that I was looking for medical diagnoses from the normal behaviors of my dog. It hurt to hear comments like that, but I was the one who had to assure that Thane was given what he needed. To those very people who felt that way, my feelings are this- had I stopped looking Thane's career and very life would have been shortened dramatically. I don't know what the future holds for Thane and I- whether or not there will be irreversible issues, weaknesses for life in certain realms or not. All I know is that right now, I just feel like I have been punched in the gut.
When Thane was diagnosed, I remained pretty optimistic about it all. I had the attitude of *finally we know what's wrong* more than the attitude of how damaging a disease this can be. When the vet said he could still work as long as I listened to him, I assumed in error that as long as we took days off to live life at home, that Thane and I would continue to do at least the errands we loved to do as a team.
Today I got hit right between the eyes with how wrong I was. Reality quite frankly stinks. It rarely measures up with expectations. In this case I just felt empty. I had Thane in a situation where the only solution was to walk short distances and stop for breaks- breaks that Thane determined the length of time we took down time along the route back to the max stop. I did everything I could to minimize his walking distance- took a stop I loathe so that we just had to go up to the end of the transit center stop to connect with our bus and then took the stop in town that we could follow a shortcut path straight home.
I was glad to be home and above all sorry from the depths of my being that I had so badly misjudged Thane's abilities right now. All I thought about is that we had been home for several days rest which IMO meant we were good to go.
Now with reality setting in, I feel this sadness coming over me. Don't get me wrong, I still aim to be optimistic here- but reality just has a way of jerking you back from this fantasy of what it will be to what it truly is. Lyme Disease is not for the faint of heart. It ravages ones insides- affecting everything and anything in its tenacious journey.
I knew that we did not catch Thane's early. This bug has had over two years to bounce around inside of him causing one roller coaster ride after another along the way. He'll still jump up after a really long nap to play some ball, but there is less drive- less forceful obsession in the way he goes about it. One of the biggest things I noticed this week was how much he slept. Every time I turned around to do something, he was curled up again taking another nap. I'm trying to tell myself that this is good that he is listening to his own needs, but a part of me feels wounded by it as well. From the simplest of issues to fluctuating lameness to neuro involvement, Thane has been trying to tell us for over a year that something was wrong.
Some people seemed to feel that I was looking for medical diagnoses from the normal behaviors of my dog. It hurt to hear comments like that, but I was the one who had to assure that Thane was given what he needed. To those very people who felt that way, my feelings are this- had I stopped looking Thane's career and very life would have been shortened dramatically. I don't know what the future holds for Thane and I- whether or not there will be irreversible issues, weaknesses for life in certain realms or not. All I know is that right now, I just feel like I have been punched in the gut.
04 July 2011
Bah Humbug on Celebrations
Call me unpatriotic if you wish, but I think fireworks were the worst creation mankind ever came up with. This neighborhood used to be relatively peaceful. A few firecrackers would go off after dark on the 4th of July and New Years Eve but nothing extravagant. Then we got new neighbors across the way this spring and all hell has broken loose! Not only has it become fireworks haven even before it turns dark, but its like a block party over there.
Yesterday on our way home from Winco we barely could get to our crossing point to come into our complex for all the vehicles parked on the side of our narrow road. I knew we were in trouble when that was happening, but sorta wanted to give them the benefit of the doubt at the moment. I mean afterall yesterday was not the 4th of July- YET.
Last night was no picnic. Starting around 11PM about every fifteen to twenty minutes fireworks went off. This went on until after 2AM. If I knew who was doing it believe me I would have called the cops. Being deafblind though has huge disadvantages when it comes to reporting illegal activity or disturbing the peace situations. We slept in this morning to make up for the disturbed sleep, but I knew the worst was yet to come. I guess after all my experiences with this guy and his burning and his teenage behavior in his go-cart running up and down the street this spring and summer, I pretty much know what he is like now.
I was not to be mistaken. This evening's fireworks and commotion are bad. During one of the incidents, Thane had his mutt muffs on and they did absolutely no good. We were being silly and playing while he wore them or shook them off his ears to around his neck- nope they don't work well on all head shapes. That was a waste of money and a years detox process.
Though Thane settled down after the first few stopped, I believe I have possibly lost him to the bedroom or bathroom for the night now. I hate what this is doing to him this year. They've always bothered him a little, but not like this. Before anyone tells me to try desensitization with him or train my way through it, that ain't gonna cut it. You see one of Thane's Lyme symptoms is heightened sound reactivity. It mostly effects that unexpected occurence- you know like we're playing ball or doing a task of other nature and then out of the blue pop, pop, pop or boom or whatever other sounds they make. Since I don't hear them, only his reaction tells me they are going off unless they are like a couple of them that I actually felt go off.
The only thing I can do at this point is ignore him and let him do what he must to get through this night as unscathed as possible. I already cranked the air purifier, closed the front blind, and pulled out Met's white noise box. Its cleaned up and running on high. I never thought I would need that for Thane. Something tells me I better go find some movies to tide us over tonight as this could be one long night.
Next year I want to go to California for the holiday!
Yesterday on our way home from Winco we barely could get to our crossing point to come into our complex for all the vehicles parked on the side of our narrow road. I knew we were in trouble when that was happening, but sorta wanted to give them the benefit of the doubt at the moment. I mean afterall yesterday was not the 4th of July- YET.
Last night was no picnic. Starting around 11PM about every fifteen to twenty minutes fireworks went off. This went on until after 2AM. If I knew who was doing it believe me I would have called the cops. Being deafblind though has huge disadvantages when it comes to reporting illegal activity or disturbing the peace situations. We slept in this morning to make up for the disturbed sleep, but I knew the worst was yet to come. I guess after all my experiences with this guy and his burning and his teenage behavior in his go-cart running up and down the street this spring and summer, I pretty much know what he is like now.
I was not to be mistaken. This evening's fireworks and commotion are bad. During one of the incidents, Thane had his mutt muffs on and they did absolutely no good. We were being silly and playing while he wore them or shook them off his ears to around his neck- nope they don't work well on all head shapes. That was a waste of money and a years detox process.
Though Thane settled down after the first few stopped, I believe I have possibly lost him to the bedroom or bathroom for the night now. I hate what this is doing to him this year. They've always bothered him a little, but not like this. Before anyone tells me to try desensitization with him or train my way through it, that ain't gonna cut it. You see one of Thane's Lyme symptoms is heightened sound reactivity. It mostly effects that unexpected occurence- you know like we're playing ball or doing a task of other nature and then out of the blue pop, pop, pop or boom or whatever other sounds they make. Since I don't hear them, only his reaction tells me they are going off unless they are like a couple of them that I actually felt go off.
The only thing I can do at this point is ignore him and let him do what he must to get through this night as unscathed as possible. I already cranked the air purifier, closed the front blind, and pulled out Met's white noise box. Its cleaned up and running on high. I never thought I would need that for Thane. Something tells me I better go find some movies to tide us over tonight as this could be one long night.
Next year I want to go to California for the holiday!
01 July 2011
Our Crazy Saga of a Day
Our day of rest yesterday turned into me doing our post winter potty station cleanup in preparation for power washing of patios yesterday afternoon. I tried not to think about the consequences of it all while doing it, but boy I felt it last night and today! I was glad that was behind me, but like I said it was supposed to be a rest day.
Today we had to get to the bank and then back to the vet to sort out treatment for Thane's Lyme disease. I was grateful I woke up early enough that we could get out the door before the heat really hit for Thane. I knew doing both these errands could spell trouble for Thane's allergies and fatigue issues so other than his first morning walk routine to the bus, I wanted to keep extra walking to a minimum. Intentions were good- reality was not so much that way.
We boarded the bus to a driver who knows us well. I told her where I wanted her to be sure to let me off. Last week she missed our stop after assuring me she would get us there. Due to the one way street layout, inaccessible walk signal buttons, and non-ADA compliant bus stops in conjunction with ramp designed buses, we had to go to the max stop to get a safe enough place to de-board. It was nice and we have done that walk back to Winco before, but it was not essential- if you know what I mean.
Today I happened to get the same driver. I told her where we needed off and she assured me she would get us there. What do you know? She passed our stop again and then accused me of falling asleep! I wanted to bite her head off because today of all days we did not need this. Not only did she pass our stop, but there was no sidewalk for us to travel back on the roadway. She said it was wide and called the ramp a little steep. Her idea of a little steep leaves much to be desired! It was so steep that Thane had to grip the ramp tread to keep himself slow enough to safely guide me down. Once we got down, I was relieved to be in one piece. The next part got even hairier though. Her idea of wide shoulder and mine while working with a guide dog greatly differ. Thane did great but there was this problem- the cars turning right from the street we were headed for. These cars turn right into the path we were on. Thane must have done four or five traffic checks before some driver had the courtesy to wait for us to get up on the curb to cross the street. The next crossing we had to make the walk signal was completely unreachable so we had to go with the cars without a walk signal. Boy was I glad when we got to the bank in one piece!
Heading home, I had a different driver. He was really great though I don't recall him from any past bus rides. I judged the time well and reminded him about five minutes before we got to our stop, but he had remembered it any way. Sometimes one can judge the time like this, but when its busy and the bus loses time, its impossible for a DB person to know how close you might be because the GPS street announcer (if you can even hear it at all) is so distorted, there is no way you can tell what it is saying.
The vet was swamped today. They had been all week evidently. She had tried to fax me something today and it failed because I was not expecting it, nor was I even home to get it. In the end, we used one of the other workers as a bit of a go between (between the vet and myself) to get things sorted out to start Thane's treatment process for Lyme.
One thing that was so funny was that I was sitting kind of in a corner today because there was not room for our typical setup when we got there. The gal who was helping us, thought I left Thane home. She was trying to find out when I was going to bring him and I did not understand what she was saying as some of those dogs were so noisy! It seemed like Thane was the only dog with training at all. Anyway things quieted down when she came back the next time to talk with me at which point when she asked that question again, I pointed down beside me saying, he's right here. She looked over the counter and was shocked at his quietude. We got the fresh weight they needed on him just to be precise for his prescription, then we got to head home.
We were going to shortcut it home, but irregardless of what route we took, we had to use the crosswalk with no walk signal. It has flashing lights for the cars to stop. This crosswalk is usually uneventful, but not so today! Boy, Thane must have gotten tired of traffic checking me today!
After washing Thane down for his allergies, he took a nice long nap while I dealt with setting up my fax and the subsequent issues in providing payment information to the compounding pharmacy.We played a bit afterwards and in short intervals here and there throughout the afternoon, but honestly I see how zapped he gets now and hope that his meds get here sooner than I anticipate them to.
Today we had to get to the bank and then back to the vet to sort out treatment for Thane's Lyme disease. I was grateful I woke up early enough that we could get out the door before the heat really hit for Thane. I knew doing both these errands could spell trouble for Thane's allergies and fatigue issues so other than his first morning walk routine to the bus, I wanted to keep extra walking to a minimum. Intentions were good- reality was not so much that way.
We boarded the bus to a driver who knows us well. I told her where I wanted her to be sure to let me off. Last week she missed our stop after assuring me she would get us there. Due to the one way street layout, inaccessible walk signal buttons, and non-ADA compliant bus stops in conjunction with ramp designed buses, we had to go to the max stop to get a safe enough place to de-board. It was nice and we have done that walk back to Winco before, but it was not essential- if you know what I mean.
Today I happened to get the same driver. I told her where we needed off and she assured me she would get us there. What do you know? She passed our stop again and then accused me of falling asleep! I wanted to bite her head off because today of all days we did not need this. Not only did she pass our stop, but there was no sidewalk for us to travel back on the roadway. She said it was wide and called the ramp a little steep. Her idea of a little steep leaves much to be desired! It was so steep that Thane had to grip the ramp tread to keep himself slow enough to safely guide me down. Once we got down, I was relieved to be in one piece. The next part got even hairier though. Her idea of wide shoulder and mine while working with a guide dog greatly differ. Thane did great but there was this problem- the cars turning right from the street we were headed for. These cars turn right into the path we were on. Thane must have done four or five traffic checks before some driver had the courtesy to wait for us to get up on the curb to cross the street. The next crossing we had to make the walk signal was completely unreachable so we had to go with the cars without a walk signal. Boy was I glad when we got to the bank in one piece!
Heading home, I had a different driver. He was really great though I don't recall him from any past bus rides. I judged the time well and reminded him about five minutes before we got to our stop, but he had remembered it any way. Sometimes one can judge the time like this, but when its busy and the bus loses time, its impossible for a DB person to know how close you might be because the GPS street announcer (if you can even hear it at all) is so distorted, there is no way you can tell what it is saying.
The vet was swamped today. They had been all week evidently. She had tried to fax me something today and it failed because I was not expecting it, nor was I even home to get it. In the end, we used one of the other workers as a bit of a go between (between the vet and myself) to get things sorted out to start Thane's treatment process for Lyme.
One thing that was so funny was that I was sitting kind of in a corner today because there was not room for our typical setup when we got there. The gal who was helping us, thought I left Thane home. She was trying to find out when I was going to bring him and I did not understand what she was saying as some of those dogs were so noisy! It seemed like Thane was the only dog with training at all. Anyway things quieted down when she came back the next time to talk with me at which point when she asked that question again, I pointed down beside me saying, he's right here. She looked over the counter and was shocked at his quietude. We got the fresh weight they needed on him just to be precise for his prescription, then we got to head home.
We were going to shortcut it home, but irregardless of what route we took, we had to use the crosswalk with no walk signal. It has flashing lights for the cars to stop. This crosswalk is usually uneventful, but not so today! Boy, Thane must have gotten tired of traffic checking me today!
After washing Thane down for his allergies, he took a nice long nap while I dealt with setting up my fax and the subsequent issues in providing payment information to the compounding pharmacy.We played a bit afterwards and in short intervals here and there throughout the afternoon, but honestly I see how zapped he gets now and hope that his meds get here sooner than I anticipate them to.
29 June 2011
My Life as a Deafblind Individual
This week, as it turns out, is Deafblind Awareness Week. This was news to me. I decided I would write my thoughts about what it means to me to be deafblind.
There are many variations of deafblindness. Some people are totally deaf and totally blind. That said, that form of deafblindness is rare. Many like myself who are deafblind have some sight and hearing remaining, but can't decipher what they are seeing or hearing or can't do so without much concentration.
I live a secluded deafblind life. I don't have friends IRL who are deafblind because of my MCS and where I live. There is not a large deaf or deafblind community here- so culturally I am like anyone of you. I just have to work hard to fit into a world that functions to high degrees on sight and hearing senses.
I miss the deaf community experiences I had in California. It never donned on me just how much I was leaving behind when I packed up Met and my belongings and headed off to Oregon where I've left that culture behind and have had to live like a hearing sighted person to fit in- especially into family. It hasn't been easy but I have adjusted.
So what's my life like anyway?
I am profoundly deaf. I can make out what some people say as long as they face me, have no accent or speech impediment, and there is no background noise. I can wear hearing aids for the essentials, but due to EMF sensitivity, the consequences of doing this can be high for me; thus I opt against wearing them for anything that I can get by with my guide dogs sense of sound for. Sometimes its great being deaf because I can tune out things that others find really annoying. Other times, sounds that I can hear, send me over my rocker if you know what I mean- like fireworks (but those I hear minimally at best now thankfully!) Progressive deafness has its moments of being a blessing and then moments when it feels like a curse. Most times, I like my quiet- perhaps because I have lived at this level for so many years of my life.
My eye disease is not common, but has the impact of a distorted jigsaw puzzle with most of the pieces missing. The pieces I do make out, I have no idea what they really are, how close to me they are, or how far to the right or left they may be. By all measures of functionality, what I do see, does me no good.Its been harder to adjust to my blindness then to my deafness- perhaps because my blindness came later and ended many enjoyable past times, took away my ability to see pictures, and almost took away every hobby I had since my MCS (but not quite)
I don't sit at home and twiddle my thumbs though. grin Instead I live my life independently. I ride the fixed route bus and max trains, go to the store, to the bank, to the Drs, to the Veterinarians, to take leisure walks, to experience new routes in new locals. I am like anyone else except I just need to use a tactile mobility aid to judge traffic, braille compass to judge directions, and my guide dog to navigate the path we need to take- and yes, every once in a while save me from people who drive carelessly, or who interfere as we are walking down the sidewalk or trying to cross a street because they want to know all about my dog or tell me how they have one just like him at home.
This life I live certainly isn't the one I envisioned when I graduated from highschool, but its a good life. When I am not out in the community, I am home resting, training my dog, doing laundry, cleaning my home, making my meals, sewing new gear for my guide dog or clothes for myself, or best of all- playing with Thane. Playing ball is Thane's most favorite past time thing to do.
In my dreams I would be able to find an ASL teacher to help me learn tactile ASL so I could understand more easily what is being said at appointments, but with MCS that is not in the cards. Before MCS, before service dogs were in my life, before I was legally blind, I had taken two semesters of ASL. I was able to benefit from it in classes but with my visual impairment my comprehension level from a distance was minimal. As a result of this difficulty, I preferred the captioning method.
I don't know what the future holds for me with my progressive dual sensory losses- whatever it entails though, I am sure I will figure a way to continue to live my life in independent fashion- cuz afterall I hate waiting for people to do things for me. I am an independent deafblind gal who just loves to live my life without having to lean on others. I guess its just who I am. grin
There are many variations of deafblindness. Some people are totally deaf and totally blind. That said, that form of deafblindness is rare. Many like myself who are deafblind have some sight and hearing remaining, but can't decipher what they are seeing or hearing or can't do so without much concentration.
I live a secluded deafblind life. I don't have friends IRL who are deafblind because of my MCS and where I live. There is not a large deaf or deafblind community here- so culturally I am like anyone of you. I just have to work hard to fit into a world that functions to high degrees on sight and hearing senses.
I miss the deaf community experiences I had in California. It never donned on me just how much I was leaving behind when I packed up Met and my belongings and headed off to Oregon where I've left that culture behind and have had to live like a hearing sighted person to fit in- especially into family. It hasn't been easy but I have adjusted.
So what's my life like anyway?
I am profoundly deaf. I can make out what some people say as long as they face me, have no accent or speech impediment, and there is no background noise. I can wear hearing aids for the essentials, but due to EMF sensitivity, the consequences of doing this can be high for me; thus I opt against wearing them for anything that I can get by with my guide dogs sense of sound for. Sometimes its great being deaf because I can tune out things that others find really annoying. Other times, sounds that I can hear, send me over my rocker if you know what I mean- like fireworks (but those I hear minimally at best now thankfully!) Progressive deafness has its moments of being a blessing and then moments when it feels like a curse. Most times, I like my quiet- perhaps because I have lived at this level for so many years of my life.
My eye disease is not common, but has the impact of a distorted jigsaw puzzle with most of the pieces missing. The pieces I do make out, I have no idea what they really are, how close to me they are, or how far to the right or left they may be. By all measures of functionality, what I do see, does me no good.Its been harder to adjust to my blindness then to my deafness- perhaps because my blindness came later and ended many enjoyable past times, took away my ability to see pictures, and almost took away every hobby I had since my MCS (but not quite)
I don't sit at home and twiddle my thumbs though. grin Instead I live my life independently. I ride the fixed route bus and max trains, go to the store, to the bank, to the Drs, to the Veterinarians, to take leisure walks, to experience new routes in new locals. I am like anyone else except I just need to use a tactile mobility aid to judge traffic, braille compass to judge directions, and my guide dog to navigate the path we need to take- and yes, every once in a while save me from people who drive carelessly, or who interfere as we are walking down the sidewalk or trying to cross a street because they want to know all about my dog or tell me how they have one just like him at home.
This life I live certainly isn't the one I envisioned when I graduated from highschool, but its a good life. When I am not out in the community, I am home resting, training my dog, doing laundry, cleaning my home, making my meals, sewing new gear for my guide dog or clothes for myself, or best of all- playing with Thane. Playing ball is Thane's most favorite past time thing to do.
In my dreams I would be able to find an ASL teacher to help me learn tactile ASL so I could understand more easily what is being said at appointments, but with MCS that is not in the cards. Before MCS, before service dogs were in my life, before I was legally blind, I had taken two semesters of ASL. I was able to benefit from it in classes but with my visual impairment my comprehension level from a distance was minimal. As a result of this difficulty, I preferred the captioning method.
I don't know what the future holds for me with my progressive dual sensory losses- whatever it entails though, I am sure I will figure a way to continue to live my life in independent fashion- cuz afterall I hate waiting for people to do things for me. I am an independent deafblind gal who just loves to live my life without having to lean on others. I guess its just who I am. grin
26 June 2011
Lyme Disease Strikes Thane
Thane was to be my healthy successor dog to Met- the dog who taught me about everything! We have gone through ups and downs since I got him with his health, but nothing substantially life changing like I dealt with in Met. None of the problems for Thane became too serious because of my knowledge from Met (thank you my angel boy) and the good vet we have on his case.
From a rabies vaccine reaction, to ear infections, to giardia, to fluctuating and changing symptomology of various body systems including a time where it seemed thyroid disease was a part of the plan for us (which it was not)- now the truth has come out to show its ugly self and frankly I don't think its too funny to wait until we finally have beautiful summer weather to do that!
Thane has tested positive for Lyme or actually for the bacterium that causes what we know to be Lyme disease. Before anyone says this happens to dogs who were vaccinated for Lyme disease, Thane NEVER was. Beyond that, I KNOW exactly when Thane was infected.
Though it has been a little over two years since he was infected, I am still hopeful that we have caught it early enough that treatment will be simple for us and not do any sort of damage to his gut issues with the long term need he will have to be on the meds.
I am nervous about this, but hopeful too.
I have to thank Sharon at AfterGadget blog for all her publicity on Lyme disease and the encouragement to pursue regular testing on a dog whose history of Lyme infection was thought to be negligible. Without her, I would NEVER know what was really wrong with my boy. I look forward to meeting the REAL Thane.
For those who think it still can't happen to them or their dog because of the stereotypical views held in the medical and veterinary communities, think again. Thane and I live in NW Oregon about as far from the NE as one could get and still be in the USA. If it can happen to us, it can happen to you!
Tune in for further updates, as treatment is discussed, pursued, and life moves on as a team once more all thanks to a friend and her own journey on the NE coast.
From a rabies vaccine reaction, to ear infections, to giardia, to fluctuating and changing symptomology of various body systems including a time where it seemed thyroid disease was a part of the plan for us (which it was not)- now the truth has come out to show its ugly self and frankly I don't think its too funny to wait until we finally have beautiful summer weather to do that!
Thane has tested positive for Lyme or actually for the bacterium that causes what we know to be Lyme disease. Before anyone says this happens to dogs who were vaccinated for Lyme disease, Thane NEVER was. Beyond that, I KNOW exactly when Thane was infected.
Though it has been a little over two years since he was infected, I am still hopeful that we have caught it early enough that treatment will be simple for us and not do any sort of damage to his gut issues with the long term need he will have to be on the meds.
I am nervous about this, but hopeful too.
I have to thank Sharon at AfterGadget blog for all her publicity on Lyme disease and the encouragement to pursue regular testing on a dog whose history of Lyme infection was thought to be negligible. Without her, I would NEVER know what was really wrong with my boy. I look forward to meeting the REAL Thane.
For those who think it still can't happen to them or their dog because of the stereotypical views held in the medical and veterinary communities, think again. Thane and I live in NW Oregon about as far from the NE as one could get and still be in the USA. If it can happen to us, it can happen to you!
Tune in for further updates, as treatment is discussed, pursued, and life moves on as a team once more all thanks to a friend and her own journey on the NE coast.
18 June 2011
Our Chaotic Life--- So What Else is New?!
Life's been very chaotic in our neck of the woods. From shopping for both of us, preparing and freezing extra berries for winter time, and dealing with Lowe's over my freezer arrival (lets just say I won't be shopping with them again), life has been anything but ordinary.
I continue to stick with my newfound way of life that's making me feel so much healthier than I ever felt on a meat based, junk food diet. It won't take my MCS away. What it does do however is make it easier for my body to eliminate toxicity from exposure because I am not also loading it down with toxicity form the food I eat. As nice side effects of this change, I have lost weight and no longer have any cravings in afternoon or evening.
These changes, have also led to my ability to do more with Thane. Be it working, playing, or training. Its just that when I feel better, I can do more because I have the patience and/ or stamina to pull it off. Don't get me wrong, I still have to structure my life so I don't overdo or over-expose myself, but I guess what I am trying to say is that when we are working, playing, or training I feel more enjoyment in it.
Thane and I are regulars now at New Seasons where I go for my organic diet needs as well as for some of his diet. The route we take there each week, takes us back to the spot where Thane's traffic checking skill was more than appreciated- back to the spot where an idiot nearly ran us down and then sped off as though he had not a care in the world. I was sure I would be apprehensive going back there. I even contemplated other routes we could take, but the sidewalk on the other side of the street is in such disrepair until we get much closer to the store.
I went with it and Thane did too. He showed no apprehension but was more intently focused as though that experience had changed him. I try and get something special there for his diet each time we go that he really enjoys- sorta my way of saying thank you for keeping me safe. Since he has allergies that extend to foods and is a giardia survivor, this is my way of treating him without disrupting his balance. Smile
Today's plans got thwarted thanks to my MCS, the neighbor across the way who started burning before we even got up, and the weather. After being home yesterday to deal with the freezer arrival, I really wanted to be on the go today. Sometimes in life, its a good thing to be able to adapt to the situation at hand. The trip I had planned was not urgent, but Thane sure could have used the work.
Instead we have played, trained some, took pictures of training, and I have spent time placing orders I forgot to make and only realized after printing a blank sheet of paper- a big whoops on the cartridge end of my order needs!
Hopefully tomorrow will be a better weather day for working Thane and getting the errands completed that have been put on the back burner for the last two days. I'm looking forward to being able to buy things without worrying if it will fit in my itsy refrigerators freezer. If the weather is nice enough, Thane will get to wear his blue harness that I just finished the American style loops for. He looks so cool in this powder blue color.
I sure wish summer would come and really stay! Two jipped summers in a row is not cool!
I continue to stick with my newfound way of life that's making me feel so much healthier than I ever felt on a meat based, junk food diet. It won't take my MCS away. What it does do however is make it easier for my body to eliminate toxicity from exposure because I am not also loading it down with toxicity form the food I eat. As nice side effects of this change, I have lost weight and no longer have any cravings in afternoon or evening.
These changes, have also led to my ability to do more with Thane. Be it working, playing, or training. Its just that when I feel better, I can do more because I have the patience and/ or stamina to pull it off. Don't get me wrong, I still have to structure my life so I don't overdo or over-expose myself, but I guess what I am trying to say is that when we are working, playing, or training I feel more enjoyment in it.
Thane and I are regulars now at New Seasons where I go for my organic diet needs as well as for some of his diet. The route we take there each week, takes us back to the spot where Thane's traffic checking skill was more than appreciated- back to the spot where an idiot nearly ran us down and then sped off as though he had not a care in the world. I was sure I would be apprehensive going back there. I even contemplated other routes we could take, but the sidewalk on the other side of the street is in such disrepair until we get much closer to the store.
I went with it and Thane did too. He showed no apprehension but was more intently focused as though that experience had changed him. I try and get something special there for his diet each time we go that he really enjoys- sorta my way of saying thank you for keeping me safe. Since he has allergies that extend to foods and is a giardia survivor, this is my way of treating him without disrupting his balance. Smile
Today's plans got thwarted thanks to my MCS, the neighbor across the way who started burning before we even got up, and the weather. After being home yesterday to deal with the freezer arrival, I really wanted to be on the go today. Sometimes in life, its a good thing to be able to adapt to the situation at hand. The trip I had planned was not urgent, but Thane sure could have used the work.
Instead we have played, trained some, took pictures of training, and I have spent time placing orders I forgot to make and only realized after printing a blank sheet of paper- a big whoops on the cartridge end of my order needs!
Hopefully tomorrow will be a better weather day for working Thane and getting the errands completed that have been put on the back burner for the last two days. I'm looking forward to being able to buy things without worrying if it will fit in my itsy refrigerators freezer. If the weather is nice enough, Thane will get to wear his blue harness that I just finished the American style loops for. He looks so cool in this powder blue color.
I sure wish summer would come and really stay! Two jipped summers in a row is not cool!
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